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I am a mother that is in desperate need of assistance with her 29 year old daughter, Daniele.  Daniele has been diagnosed with Mixed Connective Tissue Disorder.  This disease has an unknown origin and is trying to claim my daughter’s life.  It has destroyed approximately 72% of her lungs and some days claim usage of her joints.  She is on full disability and is not able to work. Yet, she still must try to maintain a household to include two very young children, one of which has just passed to the first grade and the other is just a toddler.  She has completed a 5 day pre-transplant series of tests at Duke Hospital in Durham, North Carolina.  Both lungs will need to be replaced very soon.  Her condition is continuing to worsen as time goes on.  She is not able to fully engage with her children and enjoy this time of their lives as one would expect from a mother of her age.

After the tests results mentioned above she didn’t pass one of them.  Daniele has a weak esophagus and  in order for Daniele to completely qualify for the transplant she must be able to hold food down. In her current condition she is non-transplantable.  Medicaid won’t pay for the specialist for her throat.

I can’t just let my daughter go. We need your help!